The evaluation of patient reported outcome measures in Behçet's disease in the perspective of chronic care model

Aim: The aim of the study was to examine patient-reported outcome measures in Behçet's disease (BD) in the perspective of chronic care model. Materials and Methods: In this retrospective study, 339 BD patients (F/M: 179/160, mean age: 36,13±9,81 years) included. Data were collected by a structured questionnaire regarding use of healthcare services, treatment expectation, work-day loss, work productivity and activity impairment (WPAI) questionnaire, Oral Health Impact Profile-14 (OHIP-14) questionnaire for oral health related quality of life and disease activity indices regarding Behçet syndrome activity scale (BSAS) and Mucocutaneous index (MI). Results: Work-day loss that was associated with the number of medical visits (r:0,45 p=0.000) and daily activity impairement were also seen in the group. The duration for dental visit was corrrelated with OHIP-14 score (r: -0,25 p=0.000). In the mediation analysis; it was found that OHIP-14 score was increased by the presence of oral ulcer (p=0.0000). The negative expectation of the treatment as a mediator in the indirect path (p = 0.0001) and age as a second mediator was also associated with poor OHIP-14 score (p = 0.0053). Disease severity was a moderator in the relationship between presence of oral ulcer and age (p=0.0040). Conclusion: In chronic disease maanagement, work-day loss and daily activity impairement were seen. Oral health related quality of life was affected by oral ulcer activity, treatment expectation and age in the group. Keywords: Chronic care model, patient-reported outcome measures, Behçet's disease.