Parenting stress, caregiver burden and coping self-efficacy in primary caregivers of children with esophageal atrezi

ABSTRACT Pars H. Determination of Parenting Stress, Caregiving Burden and Coping Self-Efficacy in the Primary Caregiver of Esophageal Atresia Children, Graduate School of Health Sciences of Hacettepe University, Epidemiology Program, Master's Degree Thesis, Ankara, 2024. The World Health Organization emphasizes the importance of stress, self-efficacy and caregiving burden in the foundations of the concept of mental health. This study was conducted as an analytical cross-sectional study to evaluate parenting stress, caregiving burden and coping self-efficacy in primary caregivers of children with esophageal atresia and to determine the factors associated with caregiving burden. A specially designed data collection form, Zarit Caregiving Burden Scale, Coping Self-Efficacy Scale and Parental Stress Scale were used to collect 139 valid data. Analyses were performed with IBM SPSS Statistics 26 and IBM SPSS Amos 21 and Jamovi package programs. It was determined that 68.3% of the participants did not have a light caregiving burden. There was a statistically significant low level negative relationship between the Caregiving Burden Scale and Coping Self-Efficacy Scale scores, and a statistically significant moderate level positive relationship between the Parenting Stress Scale scores. In the structural model examined, Coping Self-Efficacy was not found to mediate the relationship between Parenting Stress and Caregiving Burden. In logistic regression analysis, parenting stress was found to be associated with caregiving burden (OR=1.1, 95% CI=1.1-1.2) when coping self-efficacy, gender, history of miscarriage, gestational age and presence of additional chronic diseases in the child were controlled. History of miscarriage and gestational age were found to be the other variables associated with caregiving burden. In order to determine moderate-heavy and heavy caregiving burden according to the Parenting Stress Scale score, cut-off points were created using ROC curves and Youden index. The area under the ROC curve was 0.765 and the cut-off point of the scale was determined as 22.Those with a parenting stress scale score of 22 and above, a history of miscarriage and gestational age between 31-40 years can be considered in the group to be prioritized in terms of caregiving burden. The findings of the study will be a guiding source for hospital administrators, policy makers related to chronic diseases and health professionals working in this field in terms of planning future interventions. Key words: Caregiver, caregiver burden, self-efficacy, mental health, stress