Awareness of digital health data

Electronic Health Records (EHR) systems are systems that allow people to collect, record, store, transmit, access, relate, process and use all information about their past and present physical and mental health conditions in computer environment. The illegal acquisition, processing or sharing of health data, which includes the most intimate information of people, may cause serious harm to the person concerned, especially discrimination. Sharing this information causes the privacy of the person's private life, the protection of the patient's right to privacy, and the violation of the doctor's obligation to keep secrets against his patient. Security weaknesses in the hardware or software of the digital systems where Personal Electronic Health Records (PEHR) are kept, making the systems vulnerable to cyber attacks is another problem. Attackers who manage to infiltrate the systems can make changes to the health data stored here or sell the data to third parties for other purposes. The loss or incorrect anonymization of personal health data is considered as other weaknesses. Both individuals and social sensitivity about all these vulnerabilities increase, and discussions and studies are increasingly on the agenda of the public. In this study, the survey living in Turkey and participating in the study with different demographic characteristics awareness and expectations regarding personal health data of individuals were examined statistically measured and evaluated. According to the results obtained within the scope of the study, the majority of the participants stated that they found communication, personal information, family health information, examination results and operations they had personal. In the same context, they stated that they do not consider the names of family physicians, specialists and health institutions personal. Majority of the participants stated that they knew that this information was recorded in digital media. Participants stated that health data could be misused and were greatly concerned about data privacy protection. Participants want to authorize themselves who can view health data and health expenditures. Regarding the storage of health information in digital environment, the participants generally stated that they found the health information stored in digital environment and digital media reliable. Participants stated that they found this information useful by health institutions and doctors for their own treatments. The majority of the v participants stated that the state is responsible for ensuring the security of health data and that all rights regarding health data belong to them. Although the rate of participants who state that health data is special personal data is quite high, the rate of participants who know that their personal data is protected and who know what to do in case of data breach is not as high. When the findings obtained as a result of the study were evaluated, it was found that the awareness of individuals working in the health sector about personal health data was high, while the awareness increased with the increase in the education level of the other participants. Keywords: MIS, Information Security, Personal Health Data, Digital Health Data, Health Data Awareness and Expectations