Spastik serebral palsili çocuklarda el becerisi ve üst ekstremite fonksiyonlarının katılım ve yaşam kalitesi üzerine etkisi

The purpose of this study was investigating the effect of manual ability and upper extremity function on participation and quality of life in children with spastic cerebral palsy (CP). 30 children with CP aged between 4 -12, have Gross Motor Function Classification System (GMFCS) 1-3 and Manual Ability Classification System MACS) level 1-3 were included to study. Demographic information of the participants was collected by asking the family face to face. In addition to MACS, Box Block Test (BBT) was used to evaluate manual ability for both dominant and non dominant hand. Quality of Upper Extremity Skills Test (QUEST) was utilized to evaluate upper extremity functions. The Cerebral Palsy Quality of Life Questionaire - Child Primary Caregivers (CPQOL), a disease-specific scale, was administered with the help of the family to evaluate the quality of life (QOL) in children. Participation assessment was completed with the help of the family by applying the Participation and Environment Measure - Children and Youth (PEM CY) scale. Data were analyzed using SPSS version 25. According to the results, there is no correlation between manual ability and quality of life (p>0.05). A correlation was found between the average frequency of home participation, the family's desire for change and manual ability, and between upper extremity skills and the family's desire to change subtest of PEM CY (p<0.05). In school participation there was a correlation between QUEST test and desire to change subtest of PEMCY. No relationship was found between community participation and manual ability and upper extremity functionality (p>0.05). There was moderate positive correlation between PEM CY and CPQOL in many subtests. To conclude, manual ability, upper extremity functions are not correlated to QOL. Manual ability and upper extremity functions are correlated with only some aspects of participation. Quality of life was found to be moderately correlated with participation in this study. Keywords: Cerebral Palsy, Manual Ability, Upper Extremity Functions, Participation, Quality of Life